My Life with Neurofibromatosis and Chronic Migraines | Health Update

 

A video on my life with Neurofibromatosis type 1 (nf1) and chronic migraines, as well as an update about my diagnosis of pseudotumor cerebri. I’ve had a lot of questions, so I figured an in-depth video was the best way to answer them.

Watch more Health videos: https://goo.gl/Y8HWFf

I know I might have scared you a bit with my Pseudotumor Cerebri video. Out of context, it seems like a very scary thing. It is, but I’m not really a stranger to seriously intense migraines and chronic pain. Neurofibromatosis is a genetic condition I’ve had since birth, so I have a lot of experience with it.

My videos on this channel are still mainly books, writing, and general fun stuff. I wanted to make this video for anyone out there who is scared about their own diagnosis or for anyone who wants to learn more.

I also believe that disability should not be so stigmatized, so it is important to show that my health may limit me somewhat, but I am still able to live an awesome life. Chronic pain or disabilities of any sort are just a limitation, they don’t define a person.

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